Diamonds On The Water

When sunlit diamonds reflect on the water, they glimmer and shimmer. Glittering sparkles on the surface, hiding the dark secrets below.

Diamonds On The Water

The depths are filled by the infinite streams, flowing into the great timeless ocean. Drop by drop the endless flow mirrors the roaring cascade of the drip, drip of our tears.

Below the surface of our sparkling smiles, we cover the truth of the physical, emotional, mental, and human spirit pain, we have endured in our lives. Our radiating smiles on the outside are a reflection of the sunny world we desire to show, and to live in.

It is the mask we present to the outside world, all the while we are going through deep issues in our lives. We all have challenges of varying degrees of difficulty.

Don’t know if you can handle the change in your body? You don’t think you can handle the pain, discomfort, even the occasional stigma? Yes, you can, because it doesn’t matter how deep the water is when you know how to swim.

Don’t let the deep water scare you. You can handle a lot more than you think you can. It doesn’t matter how deep the water is when you know how to swim.

You may exclaim, “Whoa, I’m in over my head!” You might have the overwhelming feeling, you’re in way to deep. Be encouraged and remember, it doesn’t matter how deep the water is when you know how to swim.

Swimming is a matter of keeping your head, neck, and spine in line, as you reach forward and pull yourself along, even when you’re wearing a life preserver. As you move through life, hold your head high, and with a straight back, reach, and then reach out ever more to life, and you will keep on keeping on.

The surface glitter conceals the dark secrets below. It’s true water like life issues, comes in many forms, and is a force to be reckoned with. It can give life, or it can take it.

As you hold your head high and pull yourself forward through life, know that it doesn’t matter now deep the water is, you know how to swim.

Authored by:

Jo-Ann L. Tremblay

Percy Stoma

Everyone you meet has a story to tell.”

www.jo-annltremblay.com

Are you interested in reprinting or republishing this blog? With your written request, be our guest. We want to help connect people with the information they need. We just ask that you link back to joannltremblay.wordpress.com, preserve the author’s byline and refrain from making edits that alter the original context. Questions and your reprint/republishing request(s) go to:www.jo-annltremblay.com, click on the “contact” page, and fill out the contact form.

Advertisements

A Secret Door

DoorBehind the thin decorative covering of our clothes and outward facade, there is a secret door. This door is the gateway to the fascinating world of our internal physical, emotional, intellectual and human spirit, our inner universe.

It just so happens we ostomates, have had a true life/death defying experience, and we have survived. This experience, and the creation of our secret door has impacted us in all ways possible. We will never be the same again.

During the time leading up to the creation of our secret door, we were ill, and this presented us with health issues that seriously affected our lives. Then, our secret door was created. We were impacted externally and internally, and our lives have been changed forever. When the door was opened we began a new chapter of our life story. A chapter that is often a physical, emotional, and social dichotomy of good and not so good, consequences.

In the years since I became an ostomate and through my Ostomy Canada Society volunteer responsibilities, ostomy support groups, social media forums, Ostomy Factor Blog and my website, so many people have shared their stories of personal experiences.

Through our shared stories we participate in camaraderie, experiences and understandings, that offer all of us clues to the inter-connectedness of all people, ostomate and non-ostomate alike. This is a source for food for thought, and of inspiration.

We share common experiences. Some of us are a parent, a friend, a co-worker, a child, a sister, a brother… We are part of a greater whole on this planet, and in this universe of universes.

As the events of our lives unfold, through the secret door, we internalize and we externalize. There are wondrous possibilities available in both the inside and on the outside. We can take the opportunity to incorporate these potentials in our everyday lives.

Life in reality for everyone is complex, and filled with events, issues, and perceptions. There are no simple or all encompassing solutions. Yet, as ostomates through our physical secret door, we have been gifted with not only continued survival, but with a symbolic representation of a gateway to life’s quantity and quality of life.

Behind the thin decorative coverings, there is a secret door. It is the opening created to give us a new way to eliminate what no longer serves us. It is the threshold to boundless energy, potential, and possibility, all of which we can use for expressing our unique individuality, as we navigate through our 2nd chance at life.

We can perceive the door as closed, and so, we become limited and prevented. Or, we can perceive the door as the opening to potential and possibility. Each of us faces a choice, we hold the key. We can turn back and be defeated by this barrier, or we can push on and step forward into the wondrously something new.

Authored by:

Jo-Ann L. Tremblay

Percy Stoma

Everyone you meet has a story to tell.”

www.jo-annltremblay.com

Are you interested in reprinting or republishing this blog? With your written request, be our guest. We want to help connect people with the information they need. We just ask that you link back to joannltremblay.wordpress.com, preserve the author’s byline and refrain from making edits that alter the original context. Questions and your reprint/republishing request(s) go to: www.jo-annltremblay.com, click on the “contact” page, and fill out the contact form.

We Know What Its Like…

We know what its like to suffer. We know what its like to persist. We know what its like to face death. We know what its like to survive.

We understand we have endured a life altering experience, and now we live 2 sides of ourselves for the rest of our lives. They say no matter how you split it, there are always two sides to every coin.

IMG_0342

On one side we are joyously grateful, our lives have been saved. On the other side, we are terrified of the altered body and function, we have to live with for evermore.

We worry about the potential for blockages. We are happy to at least, be able to poop in a bag. It sure is an endurance, but way better than the alternative, for every single one of us.

We are hyper focused on everything we eat. We are ever vigilant and prepared, in private and in public of any equipment breaches.

Our ostomy has made it all possible-but at what cost? Our bodies have been altered. Possibly our brains eventually become rewired too.

We are confronted with stigma by some, and praised for our persistence and courage to live life to the fullest, in spite of it all, by others.

We swim in a sea of nostalgia, longing for the old days. Yet, we do the happy dance that we now have more opportunities to live, love, and laugh.

We battle fatigue, discomfort and at times pain, on a daily, weekly, monthly, and yearly basis. And, because we were at the brink and have come back, we can do anything. We just have to strive, and push ourselves.

Some days we declare:

Today was the most crap filled day ever

And don’t try and convince me, that

There’s something special about everyday

Because when you explore in more detail, taking that closer look

My world is a poopie place

Now read the previous 5 sentences from the bottom to the top, and you will know what we also declare.

No matter how you split it, there are always 2 sides to every coin. Like it or not, there is duality to everyone’s life. Besides feeling our personalities seem to be split, what does the duality of life do for us? Duality is the great teacher and equalizer. It teaches us, that all aspects of our selves and lives, are rooted in the interaction between opposite and seemingly competing forces. The experience of these forces do not have to be viewed as opposite, in fact they can be complimentary. Like the wings of a bird, they definitely don’t cancel out each other, they purely offset each other. And, this is balance.

We know what its like to suffer. We know what its like to persist. We know what its like to face death. We know what its like to survive.

Authored by:

Jo-Ann L. Tremblay

Percy Stoma

“Everyone you meet has a story to tell.”

www.jo-annltremblay.com

Are you interested in reprinting or republishing this blog? With your written request, be our guest. We want to help connect people with the information they need. We just ask that you link back to joannltremblay.wordpress.com preserve the author’s byline and refrain from making edits that alter the original context. Questionsand your reprint/republishing request(s) go to: www.jo-annltremblay.com, click on the “contact” page, and fill our the contact form.

 

Goodbye 2017-Hello 2018

As the sun sets on 2017, “Wow, what a year”, comes to mind. It has been

Sunseta year of extremes on this living orb we call Earth.

Canadians celebrated throughout the year, as we wished Happy 150th Birthday to Canada. We partied in every community across the country, and what a party it was!

We participated in the celestial dance of the sun and moon, as many of us watched the eclipse. We stood in communal awe at the wonders of the universe. There were an onslaught of monster hurricanes that ravaged and devastated so many. It has been a year of fires, floods, and ferocious winds.

There were of course a slew of shocking controversies, great global tensions, bombshell revelations, and investigations. There was a lot of fuzzy fact-fiction going around. It has been a year feminism fought back, a year of apologies for behaviour, and the #MeToo movement.

On a more personal note, throughout 2017, I have been grateful to the Ostomy Community on the national and global levels. We have had to sadly say goodbye to some of our ostomy family, friends, and colleagues. And, there are many who have joined the ostomy community this year. Although most of us never expected to have this life saving/altering surgery, it is with caring and sharing that we welcome you to the “fellowship of the bag”. Through Support Groups, Newsletters, Associations, Social Media Groups, and more… we have reached out and touched each others’ lives, as we worked hard to share information, to comfort, spread awareness, and help in reducing taboo’s and stigma.

Percy Stoma and I would like to thank everyone for your support. THE OSTOMY FACTOR Blog continues to focus on ostomy/life information, awareness, and advocacy. Each blog publication explores the life and thoughts of an ostomate and her stoma buddy. Percy and I, through this blog and our books, (Better WITH a Bag Than IN a Bag, Another BAG Another DAY, and, BAGS Around the World – available through Amazon), do hope you continue to enjoy our individual and collective, life adventures and antics, in 2018.

As the sun sets on 2017, and a new sun rises on 2018, it is our wish that the next year ahead will be the best year yet, for all.

Authored by:

Jo-Ann L. Tremblay

Percy Stoma

“Everyone you meet has a story to tell”

www.jo-annltremblay.com

Are you interested in reprinting or republishing this blog? With your written request, be our guest. We want to help connect people with the information they need. We just ask that you link back to joannltremblay.wordpress.com, preserve the author’s byline and refrain from making edits that alter the original context. Questions and your reprint/republishing request(s) go to: www.jo-annltremblay.com, click on the “contact” page, and fill out the contact form.

Through The Eyes of Others

Version 2Many years ago I suffered the unbearable pain of losing my son. We buried him, and he is now my forever memory. Fourteen years ago after thirty years of marriage, I buried my late husband. In 2011 after a lengthy illness I lay on an operating table, clinging to life. My life was saved and my ostomy, “Percy” was created. As I sit here today, I know I’ve had a lot of experience with major life challenges. And, each time I was compelled to create a “new normal” for myself and my life.

I did not do this alone. There were friends, family, and even strangers who were there as I journeyed to my new normal. Some of the people experiences were negative, and others were positive. Each negative and positive experience played an empowering role for me. My attitude has always been: even amidst a negative, there is always something good, although I may have to look deep and hard for it. Each experience was an instigating factor for spurring me on. I still wish the negatives didn’t happen, yet in spite of myself they were a part of the journey. Life is short, life is precious, and it is the people who profoundly affect our very being and experiences.

Every negative and positive person from the stranger in the store who was rude to us, the generous neighbour who dropped off some homemade jam for our enjoyment, to the child who lights up our heart, each person affects us on all levels. This fact of life for us as human beings, as individuals, and as a group, came to mind for me again this past weekend.

A friend of ours turned 40. His life partner organized a surprise birthday party at their favourite restaurant. When he walked into the room filled with family and friends, the expression on his face was priceless. He had no idea. The rest of the evening was filled with good laughs, special people, and delicious food. He enjoyed the celebration of him, and as he observed the folk in the room, he was reminded as to how special he is to them. I sensed the spark of his aliveness as his glow danced, merged, and became part of the greater aliveness of the room.

Each one of us individually and along with everyone, whether they are family, friends, or strangers, all have an affect on each other. We affect one another through the way we interpret life, and where we perceive our place to be in it. This is the foundation that supports how we live our lives, solve our problems, and how we treat one another. Each of us has our own life story that we blend and integrate into the life story of others. Like a plot within a plot, a circle within a circle, on the grand scale of life, our emerging stories enrich or impoverish us, and those who share in our life.

Since the party, our friend has expressed his gratitude, and the joy that his loving partner would organize such a special occasion to honour him. He is delightfully surprised that so many friends and family enthusiastically participated in the celebration.

As we live each ordinary day, and when we endure significant emotional events due to one reason or another, we are not alone. We journey forward on our personal life path come what may, as the community of friends, family, and strangers join us. We are connected to each other, and we affect one another through our thoughts, behaviours, and actions. Each of us has a story. It’s the narrative of us, our experiences, and the people who by choice and by chance, are part of the experiences. It’s a tale of the amazing you. May your life be filled as you touch the lives of others, and you are touched by them.

Authored by:

Jo-Ann L. Tremblay

Ostomate

“Everyone you meet has a story to tell.”

Are you interested in reprinting or republishing this blog? With your written request, be our guest. We want to help connect people with information they need. We just ask that you link back to joannltremblay.wordpress.com, preserve the author’s byline and refrain from making edits that alter the original context. Questions and your reprint/republishing request(s) go to: www.jo-annltremblay.com, click on the “contact” page, and fill out the contact form.

On a Wing and a Prayer

My nose pressed against the window, the plane is transporting us across the sky, we are headed for Orlando, Florida airport. From my cramped seat I lower my tearful eyes downward. The wisps of white clouds are racing by. With a deep sigh and a heavy heart, I lift my eyes up to the brilliant fluffy white clouds above. Beams of sunlight pour through the openings. Shafts of brilliance holding the hope that this is all just a dreamtime. But, I know I am not dreaming, and I miss her greatly.

You see, it was 2 years ago at our winter home in Florida when we headed down to the lagoon. There we enjoyed the wild dolphins, birds, water, clouds and every other treasure nature can offer. The first of what would become our daily 4:00 p.m. ritual.

We arrived and settled down on a bench and I looked over to my left and there, sitting in her wheelchair was an elderly woman. Beside her was an elderly gentleman in his golf cart. Both were looking out to the water. It was then that she looked over to us, and gave me a brilliant smile. Her smile lit up my heart, and it has glowed with her light ever since.

We walked over to introduce ourselves and the gentleman said; “Pleased to meet you. My name is Bill, and this lovely lady is my wife Straucie. She had a stroke a number of years ago and it took away her ability to speak.”

I said, “Oh that’s okay, I can’t hear well, she can’t talk well, hmm… we’ll find a way. From that day forward, Straucie and I had many lively conversations. Somehow, Straucie and I found our ways to communicate. Straucie could say a few words such as a long drawn out, “yeees”. With her facial expressions, animated body language, and her sharp mind, we discussed life, struggles, blessings, and all manner of the stuff of life. Bill and my husband Mark were often perplexed as to how Straucie and I could have discussions. At one point during our conversation, I would turn to the fellas and say, “Straucie was just telling me…”, the fellas would look at me and Straucie with crooked smiles, and then Straucie would give them a determined nod and say, “yeees”. Yup, we had discussed and understood one another!

Bill and my husband Mark talked about football, politics, and all manner of interests to them. Bill shared many stories of he and Straucie’s life together, and I must say they had us laughing at their adventures and antics.

Just about every day our feisty Straucie would head down to the lagoon at top motorized wheelchair speed with a glowing smile on her face, while Bill followed her in his golf cart. Straucie’s body was paralyzed on the right side, and at 93 years of age, Bill was taking care of her, the house, and meals with the full and consistent assistance of their dear daughter Sandy, and son-in-law, Mark. Together as a team their beloved Straucie was well taken care of.

Our love for Straucie and Bill grew to include Sandy, Mark, their children and grandchildren. Friends became like family and family like friends. As mentioned, the stroke had robbed Straucie of her ability to speak full sentences, but as we found out, she was able to sing. So sing we did! Straucie had a lovely singing voice and when she sang, many words came out clear. Together we sang her favourite hymns, and other songs including some silly ones like: Mairzy Doats which is a novelty song written and composed, in 1943, by Milton Drake, Al Hoffman, and Jerry Livingston. The songs refrain, as written on the sheet music, seems meaningless, but it is not.

Mairzy doats and dozy doats and liddle lamzy divey,

A kiddly divy too, wooden shoe…

We would both melt into giggles and laughter with the silly words. She amazed me with her ability to articulate each word, in tune and on pitch.

In the weeks before Christmas of last year, Straucie, Sandy and I went shopping. Straucie and I purchased matching Christmas sweaters. Both of us refused to wear them until Christmas day. We sure had fun being twins for a day!

We are snowbirds, Florida is our winter home only, so in May it was time to head north and return to Canada. We bid our tearful good byes with the promise we will be returning in November. We text Bill just about everyday and send pictures of our summer adventures for their delight.

In early August, Straucie fell ill. Although everyone did all that they could, our Straucie succumbed to her illness, and on the wings of angels she passed, August 14th, 2017.

With my nose pressed against the window, we are on our way to give our final good bye to the lady that lit our hearts with the brilliant light of joyful friendship, family, and love.

Bill, Sandy, Mark, granddaughter Michelle, other family and friends, gave Straucie a celebration of life she would have been delighted with. Songs were sung. Poetry, and a letter she wrote to Bill were read at the gravesite. Personal stories shared. All of this was enveloped in the love we have and hold for friends like family, and family like friends.

We miss you Straucie, we will always hold you in our thoughts. You cozied up in our hearts, and you will forever have a soft place to be lovingly remembered. Thank you for you our beloved.

With all of our love, Jo-Ann, Mark, and Percy xo

IMG_4976

IMG_5306

YIPPEE KI YAY

Happy Stomaversary to us! But for the intervention of our wonderful Canadian medical Version 2system I would not “Die Hard” – yippee ki yay. It’s our 6th year together. Percy Stoma you’re my awesome ostomy. I fought the good fight through the illness that brought me to the brink, then during the life saving surgery you were created. Together we’ve continued to battle, cope, and thrive.

We’re lifetime partners you and I, and we will continue to work hard to make life as fantastic as possible in spite of it all, as we live life to the fullest.

 

HAPPY BIRTHDAY MY LITTLE STOMA BUDDY!

Jo-Ann L. Tremblay – Ostomate

Percy Stoma

“Everyone you meet has a story to tell”

www.jo-annltremblay.com